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It’s time to speak up! Or scream 🗣️ This Global Porphyria Day, May 18, join #RealPeopleRealPain, a campaign to show the world what porphyria really feels like. 🎥 Join the #RealPeopleRealPain challenge — record a video of yourself screaming (or shouting, singing, whispering — whatever feels right), and post it on May 18. Let’s make noise for all the pain that’s been ignored for too long. 🔗 We’ve created illustrations, quotes, facts, and more to help you raise your voice. 👉Find everything you
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