Rare Disease Video - Ohtahara Syndrome, Erica's Story - National Organization for Rare Disorders
Rare Disease Video - Ohtahara Syndrome, Erica's Story - Nationa…
Jun 14, 2019
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WATCH: Meet Theo is two and has Ohtahara syndrome, a condition that causes uncontrollable epilepsy and brittle bone disease. Both he and his family have benefitted from the Family Fund Mobility Support scheme, which will give vital support to eligible families raising a disabled, or seriously ill child under the age of three, that has significant mobility needs. The funding has generously been supported by Motability Scheme. Find out more about this support and check if you, or someone you know,
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